Tag Archives: diabetes online community

Diabetes cure: here we go again

It’s a plane. It’s a rocket. It’s a CURE FOR DIABETES!!!

No. Wait. It’s not.

I am late to this blog topic table, like really late, and quite frankly, I’m completely okay with that. You see, I am not as ingrained into the diabetes online community as maybe I should be. My blog roll isn’t bursting with diabetes-related blogs, just a handful really, and for the most part, I tune into the Twitterverse in peaks and valleys. And so, when the events of last week unfolded, with regards to a supposed major cure breakthrough, I was completely, totally, 100 per cent out of the loop. In fact, because my eyes and brain have been so focused on studying for my chemistry final (seriously, whoever thought that language up must have been on crack) I’ve even fallen behind on the blogs I do read, and so, it wasn’t until late last week that I was brought up to speed on this new revelation – The Biohub – which from what I can tell is some kind of spongy thing that mimics a pancreas.

Ask me: Did I jump for joy? Did I go out looking for more information? Did I pull up the diabetes forums? Or start leaving comments of my own? Did I call my moms? Did I call Big Ring? Did my belly fill with excited butterflies and my fingers shake with joyful tingles?

No.

I’ve been down this road many times before, and honestly, my first thought, before even watching the video was “Here we go again.” Most of us in the DOC have similar stories: there will be a cure in 5 years, they told me; by the time you’re 16, you won’t be jabbing yourself with needles no more, they said; wait just five more years, they assured me, by the time you’re 21, you’ll finally be a real girl again with no weird disease following you around.

Well folks, I am now 34. I stopped believing in a cure long before I hit 21. Diabetes is too much a cash cow for Big Pharma. Yep. I’m cynical. Can you blame me?

130312pump
This getup is not a cure, but it is the closest thing I’ve got to a pancreas.

And after watching the Biohub video, I feel I’m pretty justified in my thoughts. Honestly, it was nothing more than a fundraising plea for something that, in its current state, is hardly more than just an idea.

Nope. I won’t be holding my breath. Not for this one or the next one.

I win! I win! I win!

Back in the day, I used to be real good at winning things: an ugly bike helmet, a jar full of vintage buttons, concert tickets, a year’s supply of natural energy drinks – you name it, I could win it. But as the years progressed, my winning streak fizzled. Until yesterday.

When I got up yesterday morning and checked my email, there was a notification of a link to my blog from another. I clicked on the link to see what it was all about, and was brought over to Sara’s blog at Moments of Wonderful, which had posted a list of the Best ‘Betes Blogs of the last month. And guess who was number 2 on the list? Me! For Best Vlog!!!

I WIN! I WIN! I WIN!

For those of you who didn’t check it out when I first posted it, here’s a refresher. It’s just two minutes and so worth it – if only to see the wonky eyed me!

So every month the Best ‘Betes Blog website accepts nominations in several different categories from the diabetes online community (no self nominations allowed) which are then judged and the winners posted on the first of every month. Honestly, I had no idea this existed. Despite having diabetes for 25 years, and a blog about diabetes for 2.5 years, I’m still quite new to the DOC. But my goodness, what an awesome idea.

Not only did it enlighten me to some other blogs out there that I hadn’t yet been introduced to, it was also a bit of affirmation for me as a blogger. Because here’s the thing, even though my daily stats boast some pretty decent numbers, I don’t get the oodles of comments that other blogs do, and I have sometimes wondered whether or not my words were getting to a true audience.

Seems someone thought my story worthy enough to be a best. And that, my friends, is a pretty awesome prize!

And now, because I don’t have a proper photo for this post, I shall randomly insert a pic of me wearing my new earrings, which I got for my birthday, but only just wore for the first time today. Unfortunately we got the side sporting my elf ear, but that’s a whole other story in itself… another teenaged piercing gone awry 😉


Love them!

What would you do?

Hmm… well now, this is an odd predicament I’ve found myself in. I got an email today from a fairly well known candy producer (one of which I happen to love to reach for when my blood sugars are low) suggesting I join their online community.

Apparently they produce no-sugar added products and have partnered with the Canadian Diabetes Association to create this networking community of like-minded diabetics such as myself. If I join, they will publish the title of my blog posts, as well as the first few sentences of each post. And if their readers want to see the full article, they will then be pushed to my site.

The obvious benefits are increased exposure, increased traffic to my blog, and a forum to connect with other diabetics. Seems win-win, especially given that I set out this year to double my blog traffic by the end of the year.

However, here’s where I shy away. Unlike several other diabetic bloggers, I’ve kind of snubbed the diabetic community. I am not a member of DOC, or D-Life, or Tudiabetes, or any other diabetic specific forums. The reason: sometimes I feel like people see me only as diabetes, and I feel that if I attach myself to these communities, that will further ignite those thoughts. But the thing is, I am more than just diabetes, this disease does not define me, and I have spent years fighting against that typecast. And yes, I know my blog largely has to do with diabetic related stuff, but it also has to do with running, cycling, aqua jogging, hiking, etc., etc.. And I know it’s silly, because I have met some incredible diabetics through this blog, and I am sure the benefits of even larger diabetic communities are huge, but I don’t know, the fear of succumbing to that one perceived identity holds me back.

And then, there’s the whole no-sugar added business. I’ll be honest, I am not generally a fan of no-sugar added products. I have lived three quarters of my life with people telling me I can’t eat this and I can’t eat that, and there were several years where I tried to listen, and opted for things like sugar-free chocolates. However, these were in the days when I did not have self control, and did not look closely at warning labels, or ingredients, and would just mow down on the first thing I desired. Let me just say, mowing down on a box of sugar-free chocolates is NOT a smart idea. There was one Christmas where I was sure I had the norwalk, but nope, it was just that good, old-fashioned, sugar-free laxative effect!

I have since gained an appreciation for self-control, but I have also gained an appreciation for what exercising my body can do for me. I do not have to avoid sugar as long as I take care of my body. If I want a piece a chocolate, or a piece of cheese cake, or a scoop of ice cream, I just got to work a little harder for it – and I’m okay with that.


Trying out the new Leonidas in Vancouver… first discovered the beauty of this place and its wonderful chocolates while visiting Ghent, Belgium last year.

So what do I do? Do I accept the offer and risk increasing traffic to my site, or do I continue to snub the online diabetic community and continue to average the same decent, but not super fantastic, site visits day in and day out?

What would you do?